As we walk to remember

Three years ago, I attended my first Walk to Remember. It had only been two months since I had said goodbye to my infant son, Ethan, and my grief felt so deep, so raw, and so fresh. The previous months leading up to that day had been incredibly painful and isolating in ways I couldn’t quite put into words. When a friend told me about the Walk to Remember, I felt nervous yet excited all at once–I had no idea what to expect, but something inside of me longed to connect with people who understood. I longed to celebrate my little boy and to simply say his name to someone…anyone who would listen.

I am so grateful I put my fears aside that day. From the moment I checked in, I felt seen and understood. My walls crumbled down with each person I spoke to. As each baby’s name was spoken and each rose was passed out, I felt less and less alone. While it didn’t take away the grief of losing my son, stepping into this community of like-minded people softened the jagged edges of grief in ways I never expected. I received an indescribable gift on that day—the gift of hearing Ethan’s name, the gift of honoring him, the gift of being surrounded by people who didn’t try to brush him aside or just tell me to “think positive”. I received the gift of meeting other parents and hearing about their babies–the simple gift of “me too”.

This event and the community that I’ve found in it have been a comfort to me over the years, as my husband and I said goodbye to four more babies–four more tiny babies added to the baby memorial banner. Each year, my aching heart has found comfort in knowing that I’d be surrounded by my tribe of some of the most beautiful, brave, and broken people, who shine so bright in spite of all they’ve been through. This year, I’m looking forward to including my newborn son in celebrating the five babies we lost before him.

When I look back on each year, I cannot help but see how much I’ve changed—I see the ways grief has brought out the worst in me, but far more I see the ways being a mother to five babies in heaven has made me better. And for that I cannot help but be grateful for the joy I have been given in the midst of something so painful and for the opportunity to meet and connect with so many beautiful hearts along the way–the mothers, the fathers, the siblings, grandparents, medical professionals, and friends whose hearts have been touched by a special baby in a very big way.

Each year, I’ve looked out at the crowd of attendees and have felt surrounded by support and understanding. Though the details of our stories may be different, these people know. They understand. Whether they’ve walked through loss themselves or have held the hand of someone who has, they have stood exactly where I stand. They know the pain of a due date that never comes—of “what ifs” and unfulfilled plans. They know the devastation of the words “not compatible with life” or “I’m sorry, there’s just no heartbeat”. They know the pain of laboring and delivering a child who never opened their eyes, or one who did but couldn’t stay long. They know the long days in the NICU, they know the devastation of planning a memorial service for an infant.

They also know the joy of knowing someone so small, but so special. They know the joy of knowing a love that is stronger than death. They know what it’s like not to take one sunrise for granted. They know the pride of being part of such a beautiful legacy, sparked by someone so small.

Of all people, we were chosen to be our baby’s parents. We are the best mother or father they could have asked for. We, of all the mothers and fathers in the world, were hand picked to experience a love stronger than death and to carry their legacy.

I’m looking forward to taking another another step toward this goal—together.

Forever Footprints’ Walk to Remember is an annual walk that takes place to honor babies that have died due to pregnancy loss and infant death. Parents, and their loved ones and friends, are invited to come walk the steps our babies will never take.We’d love for you to join us this year at the OC Walk to Remember or the IE Walk to Remember

 

Kristin HernandezKristin Hernandez lives in Southern California with her husband Chris and the newest addition to their family–a baby boy they welcomed home in April. After struggling with unexplained infertility for several years, Kristin was thrilled when she became pregnant with Ethan. The celebration quickly turned to concern when doctors discovered Ethan had a serious heart defect and was missing a piece of his brain–likely indicative of a chromosome abnormality. Ethan was born on August 16, 2015 and spent his 93-minute life in his parents’ arms. Kristin is now a mother to five babies in heaven, including four of Ethan’s younger siblings who she has never met. Despite these struggles, Kristin has resolved to embrace the life she has been given and to leave a legacy for her family.  Kristin works in communications by day, but can also be found running, camping, writing or having a conversation over a cup of coffee. She writes at www.sunlightindecember.com and is the cohost of the Through the Lens Podcast.

Celebrating and Surviving Milestones

From the moment I first held that pregnancy test in my hand, my heart was filled with dreams for my son’s childhood–one that I hoped would be filled with love, laughter, and plenty of family traditions. I envisioned the milestones to come: his first birthday, his first day of school, his high school graduation. My dreams were shattered into a million pieces when our precious firstborn baby was born prematurely and succumbed to a fatal genetic condition at just 93-minutes old. The milestones that I once looked forward to with such joy and excitement were now anticipated with such deep sorrow. Three years later and my heart aches each time kindergarten enrollment begins, and I often find myself blinking back tears as I count down the years until Ethan’s class will start school.

The loss of a baby has a way of changing a simple date on the calendar into a point in time that feels so significant and so heavy with a wide spectrum of emotions. How can we face the due dates, the birthdays, and the milestones that now feel so bittersweet?

As we approached Ethan’s first birthday, I reached out to my friends within the loss community for ideas of ways to spend the day and received plenty of great ideas for celebrating and surviving milestones.  

Throw a bash

One of my loss mama friends throws a birthday party for her son each year. Through the years, this tradition has been a great way to celebrate her son’s life with friends both new and old. Some party ideas include a butterfly release, cake and icecream, showing a slideshow, and/or selecting a theme that reminds you of your baby.

Give back

Several of my sisters-in-loss commemorate special dates each year by lending a helping hand in their baby’s honor. There are plenty of ways to do this, such as volunteering at a local charity, hosting a Random Act of Kindness day, donating memory boxes through Forever Footprints, or making a contribution to an organization that has had a positive impact in their life (at Forever Footprints, you can personalize a fundraising page with your families story to make it more personal). Here are some suggestions for ways to give back

Take time to reflect

Whether you prefer to have a quiet day or one filled with plenty of activity, don’t forget to carve out some time for yourself. Go to the cemetery, look through photos and special mementos, take a walk, and/or listen to songs that remind you of your baby. Turn off your phone if you need to. Give yourself the freedom to feel whatever emotions you are met with–whether the day makes you smile, cry, or both.

In my experience, there is no one-size-fits all approach to celebrating and surviving milestones. Free yourself of any pressure to face the day in a particular way. In the first year after Ethan died, I felt pressure to celebrate milestones with grand gestures–I wanted to show the world just how much I loved him. Yet at the same time, I craved a day to myself. It took me some time to accept the fact that, while there is absolutely nothing wrong with grand gestures, Ethan didn’t need that from me. My love for him was undeniable and he was at perfect peace regardless of whether I threw a big party or spent the day alone. That first year, my husband and I each took the day off work, visited the cemetery, ate dinner at Del Taco (I couldn’t get enough Del Taco during my pregnancy with Ethan), and shared a small smash cake at home. We needed a quiet day together that year. However, by the time Ethan’s second birthday arrived we wanted to get out and be around lots of people. What we have needed has changed year to year, and even day to day, and it may be the same for you. Give yourself permission to celebrate each milestone in the way that is best for your family.

And remember, no matter how you choose to spend the day, your baby knows nothing but love.

Kristin HernandezKristin Hernandez lives in Southern California with her husband Chris and their rainbow baby. After struggling with unexplained infertility for several years, Kristin was thrilled when she became pregnant with Ethan. The celebration quickly turned to concern when doctors discovered Ethan had a serious heart defect and was missing a piece of his brain–likely indicative of a chromosome abnormality. Ethan was born on August 16, 2015 and spent his 93-minute life in his parents’ arms. Kristin is now a mother to one baby on earth and five babies in heaven, including four of Ethan’s younger siblings who she has never met. Despite these struggles, Kristin has resolved to embrace the life she has been given and to leave a legacy for her family.  Kristin works in communications by day, but can also be found running, camping, writing or having a conversation over a cup of coffee. She writes at www.sunlightindecember.com and is the cohost of the Through the Lens Podcast.

 

Main photo by David Ananda on Unsplash

For better or for worse: Love after loss

For better or for worse, for richer or for poorer, in sickness and in health.

As I spoke those words back in 2011, I truly meant them from the bottom of my heart. Sure, I knew marriage wouldn’t always be easy and I knew there would be hard days, but this wide-eyed, innocent 20-something had no idea of the depth of what those words would truly mean until years later when stood beside a tiny cemetery plot and buried our infant son.

For worse, for poorer, and in the wake of devastating sickness, our innocence was stripped away and things were suddenly so much harder.

On the evening our son died, a kind nurse took my hand and warned us that things were about to get hard. She encouraged us to dig our heels down deep, to remember the vows we had meant so fervently those years before, and to fight for one another when things would become difficult–and difficult they did.

Loss has a way of changing you. In some ways it made me better, and it other ways it brought all of my imperfections to the surface. It challenged my thinking, shifted my perspectives, and altered pieces of my identity. I grieved the person I was before losing our son and I struggled to figure out who I was. I quickly learned that when two people are simultaneously being shaped through the pain of suffering and loss, things become even more complicated. We were both grieving, changing and growing. I was still trying to get to know this whole new me, all while trying to get to know my husband as we grieved and grew in different ways.

So how can we fight for our marriages and our relationships when we’ve changed so much? How do we pick up the pieces and fight for one another, rather than with one another?

Communicate

In those first few months when my grief was especially intense, I craved closeness. I just wanted someone to sit with me and let me cry on their shoulder. My husband, however, craved space. On the days when he was in the most pain, he needed time to process–alone. This was especially difficult in the beginning and it was so important to communicate our needs with one another–not only that, but to try to understand where the other person was coming from. Neither of us was grieving better or worse than the other. Our needs were simply different. It was helpful to understand what the other needed and to create a safe space to share our needs without fear of judgement.

Seek Support

There is an unnecessary stigma associated with counseling and I believe that needs to change. Before I experienced it for myself, it seemed intimidating and almost like a last resort. I haven’t heard many people speak openly about their experiences with counseling, but I will because I think it’s important. My husband and I attended counseling both together and alone after the death of our son and it played a significant role in our ability to communicate and in own growth, both as individuals and as a couple. Forever Footprints is another great resource and offers three monthly support groups. We’ve also found support by joining hundreds of other parents at Forever Footprints annual IE Walk to Remember.

Make time for one another

In the midst of the struggle, don’t forget to take some time to unwind. Go on a date. Watch your favorite TV show together. Don’t be afraid to laugh, even when it feels foreign.

Hold on tight

After our son died, my husband and I looked each other in the eye and reaffirmed our commitment to one another. We decided right then and there that we wouldn’t allow our son’s death to drive us apart. We resolved to fight for our marriage no matter what it took. The journey hasn’t been easy, but I am thankful for all of the tears, the late night conversations, the frustrations, and the growth that has taken place between now and then. I am thankful for the ways conflict and pain have ultimately drawn us closer as a couple. I am thankful to be able to walk alongside the only person who truly understands everything we’ve been through. I am thankful to be able to look upon the face that so closely resembles that of our little boy each day.

I am thankful for someone who has seen me at my best and worst, in seasons that felt rich and seasons that felt poor, and in seasons of sickness and in health.

Kristin HernandezKristin Hernandez lives in Southern California with her husband Chris and their Queensland Heeler mix, Dakota. After struggling with unexplained infertility for several years, Kristin was thrilled when she became pregnant with Ethan. The celebration quickly turned to concern when doctors discovered Ethan had a serious heart defect and was missing a piece of his brain–likely indicative of a chromosome abnormality. Ethan was born on August 16, 2015 and spent his 93-minute life in his parents’ arms. Kristin is now a mother to five babies in heaven, including four of Ethan’s younger siblings who she has never met. Despite these struggles, Kristin has resolved to embrace the life she has been given and to leave a legacy for her family.  Kristin works in communications by day, but can also be found running, camping, writing or having a conversation over a cup of coffee. She writes at www.sunlightindecember.com and is the cohost of the Through the Lens Podcast. 

Forever Footprints Programs

3 Hearts

Support Programs

Each day, hour, and even minute, a member of your community experiences a loss of a baby. Sadly, most areas are greatly lacking the support and assistance these parents, siblings, grandparents, and friends need in dealing with their heartache. Forever Footprints is working each day to fill that gap. Through our various programs, we strive to connect these hurting families to support that will offer them understanding and aid as they navigate through the journey ahead of them.

Forever Footprints Support Groups

The Balancing Life & Loss: Parenting After Loss Group is a free support group that addresses the needs of bereaved parents who, after a tragic loss, need to continue living and parenting their surviving children.

The Coping With Loss: Helping Families With The Loss Of A Child Through Miscarriage, Stillbirth, and Early Infancy Group is a free support group for bereaved parents and families who have experienced the loss of a child and need a place to help process their  experience and be able to heal.

Education and Support Books Program

Our Education and Support Book Program allows us to donate books to families and hospitals. We offer several books specifically for mothers, fathers, grandparents and children or siblings.

Journey to Remember Program

The Journey to Remember Program is a perinatal comfort care program created to provide a safe and nurturing environment for families who wish to carry to term despite a life-limiting or fatal diagnosis. We provide sensitive care facilitated by a labor and delivery nurse trained in bereavement with personal experience in perinatal loss during the pregnancy, delivery, and follow up bereavement support for the years to come.

Memory Box Program

The Memory Box Program allows us to donate memory boxes to families and hospitals. The boxes are used as a home for keepsakes and photos for anyone who has experienced a pregnancy or infant loss.

Remembrance Basket Program

Our Remembrance Basket Program allows us to donate Moses baskets to funeral homes and hospitals. The baskets are used by hospitals so they have a loving way to transport these special babies with dignity and grace.  The baskets are also used for families who want to spend time with their baby and for photographs.

Sibling to Remember Program

Our Sibling to Remember Program helps big brothers and sisters trying to grasp the loss of their new baby. Through a package personalized to best fit the loss and offer age-appropriate activities and guidance, the gift is intended to assist the child/children in understanding their own grief, that of their families, and the sudden changes in their family dynamics.