For better or for worse: Love after loss

For better or for worse, for richer or for poorer, in sickness and in health.

As I spoke those words back in 2011, I truly meant them from the bottom of my heart. Sure, I knew marriage wouldn’t always be easy and I knew there would be hard days, but this wide-eyed, innocent 20-something had no idea of the depth of what those words would truly mean until years later when stood beside a tiny cemetery plot and buried our infant son.

For worse, for poorer, and in the wake of devastating sickness, our innocence was stripped away and things were suddenly so much harder.

On the evening our son died, a kind nurse took my hand and warned us that things were about to get hard. She encouraged us to dig our heels down deep, to remember the vows we had meant so fervently those years before, and to fight for one another when things would become difficult–and difficult they did.

Loss has a way of changing you. In some ways it made me better, and it other ways it brought all of my imperfections to the surface. It challenged my thinking, shifted my perspectives, and altered pieces of my identity. I grieved the person I was before losing our son and I struggled to figure out who I was. I quickly learned that when two people are simultaneously being shaped through the pain of suffering and loss, things become even more complicated. We were both grieving, changing and growing. I was still trying to get to know this whole new me, all while trying to get to know my husband as we grieved and grew in different ways.

So how can we fight for our marriages and our relationships when we’ve changed so much? How do we pick up the pieces and fight for one another, rather than with one another?

Communicate

In those first few months when my grief was especially intense, I craved closeness. I just wanted someone to sit with me and let me cry on their shoulder. My husband, however, craved space. On the days when he was in the most pain, he needed time to process–alone. This was especially difficult in the beginning and it was so important to communicate our needs with one another–not only that, but to try to understand where the other person was coming from. Neither of us was grieving better or worse than the other. Our needs were simply different. It was helpful to understand what the other needed and to create a safe space to share our needs without fear of judgement.

Seek Support

There is an unnecessary stigma associated with counseling and I believe that needs to change. Before I experienced it for myself, it seemed intimidating and almost like a last resort. I haven’t heard many people speak openly about their experiences with counseling, but I will because I think it’s important. My husband and I attended counseling both together and alone after the death of our son and it played a significant role in our ability to communicate and in own growth, both as individuals and as a couple. Forever Footprints is another great resource and offers three monthly support groups. We’ve also found support by joining hundreds of other parents at Forever Footprints annual IE Walk to Remember.

Make time for one another

In the midst of the struggle, don’t forget to take some time to unwind. Go on a date. Watch your favorite TV show together. Don’t be afraid to laugh, even when it feels foreign.

Hold on tight

After our son died, my husband and I looked each other in the eye and reaffirmed our commitment to one another. We decided right then and there that we wouldn’t allow our son’s death to drive us apart. We resolved to fight for our marriage no matter what it took. The journey hasn’t been easy, but I am thankful for all of the tears, the late night conversations, the frustrations, and the growth that has taken place between now and then. I am thankful for the ways conflict and pain have ultimately drawn us closer as a couple. I am thankful to be able to walk alongside the only person who truly understands everything we’ve been through. I am thankful to be able to look upon the face that so closely resembles that of our little boy each day.

I am thankful for someone who has seen me at my best and worst, in seasons that felt rich and seasons that felt poor, and in seasons of sickness and in health.

Kristin HernandezKristin Hernandez lives in Southern California with her husband Chris and their Queensland Heeler mix, Dakota. After struggling with unexplained infertility for several years, Kristin was thrilled when she became pregnant with Ethan. The celebration quickly turned to concern when doctors discovered Ethan had a serious heart defect and was missing a piece of his brain–likely indicative of a chromosome abnormality. Ethan was born on August 16, 2015 and spent his 93-minute life in his parents’ arms. Kristin is now a mother to five babies in heaven, including four of Ethan’s younger siblings who she has never met. Despite these struggles, Kristin has resolved to embrace the life she has been given and to leave a legacy for her family.  Kristin works in communications by day, but can also be found running, camping, writing or having a conversation over a cup of coffee. She writes at www.sunlightindecember.com and is the cohost of the Through the Lens Podcast. 

When the New Year is anything but “happy”

-Kristin Hernandez

Gold confetti, champagne bubbles, and excited grins pierced my aching heart like knives as I scrolled through social media. The entire world welcomed 2016 with open arms–not just welcomed, but celebrated it–and I wasn’t ready to move forward. My son was born and had died in 2015. There was no dash between years on his headstone as there should have been. My entire pregnancy and his short little life had all been crammed into that year and I didn’t want to step forward, let alone throw a party over it.

New Year’s Day can be blindsiding when you’ve lost a baby. In December, many of us brace ourselves for the social gatherings, the unfulfilled traditions, and the constant reminders of the empty seat at our holiday tables. We breathe a sigh of relief as the holiday season draws to a close, only to be faced with the unexpectedly difficult transition of leaving another year behind without our children.

So how do we step into a new year and into this “new normal” when a piece of our heart is missing? What resolutions can we set for ourselves when we may not even know which way is forward?

Make a list of things you are thankful for in the previous year. As we transitioned into 2016, I resolved to write down the blessings that had come in 2015. At first, I could hardly come up with one thing, but as I began to write my teary eyes began to shine with pride and gratitude. Perhaps the previous year made you a mother, even if it came with struggle and sorrow. Perhaps you learned something about yourself, gained deeper relationships, or witnessed personal growth in your own life. Let’s take some time to be thankful for these changes and to acknowledge that the best gifts are not always the most comfortable.

Acknowledge that it is hard. Take time to mourn what you are leaving behind in 2017, whether it’s a loved one, a dream, or a part of yourself. Give yourself permission to feel, to grieve, to care for your heart and to set healthy boundaries. Give yourself some grace.

Don’t be afraid to make resolutions for 2018. It was especially difficult to make plans the following year after Ethan died, but I found it helpful to have something positive to look forward to. Start a blog, join a 5K (Forever Footprints hosts an annual memorial Walk To Remember every October), join a support group (Forever Footprints hosts groups in Long Beach, Orange and Chino,) finally try those recipes you’ve been pinning for years, or take the first step toward a personal dream.

Remember that moving forward isn’t the same as “moving on”. Embracing the new year does not mean that we are “forgetting” or “moving on”. It does not mean that we love our babies any less. Moving forward happens when we take all of the love and the pain we’ve faced and allow it to refine us and make us better. It happens when we open our hearts to more love (and potentially more heartache), free of guilt. It doesn’t simply slap on a smile, but rather it acknowledges both the joy and grief we’ve experienced as we step forward to live authentically and leave a positive legacy.

Whether 2018 fills your heart with excitement, sadness, or a little of both, we’re all in this together. Wishing you and your family a wonderful new year.

Friendships and Loss

I will never forget the first time I felt it. I was sitting in a room full of women, who were all laughing, talking, complaining about their husbands, bragging about their children. It was five months after my son Joseph had died, and I thought I could do it. I thought I could join the world again. I wanted to feel normal. But sitting in that room—with a newly formed women’s group—I never felt so alone in my entire life. The sounds all became one, like a constant buzzing. My hands started to sweat. My heart started to pound. And I ran for the door.

I ran from new friendships and I ran from my old friendships. I isolated myself from those who had children and babies. I couldn’t face my pregnant friends, because I was a reminder to them of what could go wrong. My friends’ worlds were moving forward, and my life felt as if it was standing still. I didn’t know how to be anyone’s friend.

I was different. I had held my son and watched him take his last breaths. I watched his casket being put in the ground. I had gone home to leaking breasts full of his milk, an empty nursery, and a broken heart. And my friends would never understand that.

 

 

As the months after Joseph’s death turned into years, and I sought the help of support groups and private therapy to deal with my grief, I tried to repair old friendships and begin new ones. I started to accept this was the new me. And I began to see, I didn’t have to run.

And I wasn’t alone after all. Through Forever Footprints I’ve met thousands of other women just like me. Women who have lost their child or children. Many of them have become my friends. We may not talk every day. We may not see each other for months. But I know they are there for me, and I am there for them. We are forever connected by the love of our babies.

 

I’m so fortunate to have women like Taite and Liz in my life. We share the pain of our losses but have formed beautiful friendships. Forever Footprints brought us together. To join a support group and sit beside others who know your pain, Click Here for more information.

 

I found I could become a friend to others that struggled with pain or loss. It doesn’t just come in the form of losing a child, but also through things like divorce or illness. I’m not always the friend people call to go out for a movie or to go on a girl’s trip, but I’m often the one they call when they are going through a difficult time.

 

Our friends have been a wonderful support and attended the OC Walk to Remember with us each year. I’m especially grateful to my friend Sandi who has walked beside me for 12 years at every OC Walk to Remember since it began. To create your own team or to walk in honor of a friend’s baby at the 2017 OC Walk to Remember on October 14, Click Here

 

There are still times I sit in a room and feel so different than anyone else. But I don’t run. I embrace that being a mom who has lost a child has formed me into a person who is strong, brave, resilient, and compassionate. And I tell my story, because more often than not, there someone else in that room that needs a friend.

 

Kristyn von Rotz is the Founder and Chair of the Board of Directors for Forever Footprints, a nonprofit organization that gives support, education and remembrance to families who have experienced pregnancy loss or infant death. In honor of her son Joseph, who died at birth in July 2005, she has worked for twelve years to improve the care families receive after the loss of their child or children. She’s the mom to three living children and works as a freelance writer and editor. Click Here to follow her Facebook page.

A Mother’s Love

In October of 2009 we were shocked to learn that we were expecting triplet boys. The news brought the eventuality of bedrest, NICU, and the like. In spite of all the risks associated with a multiple pregnancy, we never even considered the possibility of a loss. We were in good hands, we were being watched carefully, and there was no reason to believe that something would go wrong. Until it did.

At 32 weeks and 5 days, I went in for a routine check, and we were given the devastating news that Baby B’s heart had stop beating. In an instant our life changed. We went from anticipating the arrival of three beautiful boys, to mourning the loss of one, and praying like mad for the other two.
Later that same day, all three boys had to be delivered. It was the most bittersweet moment of our lives. Hearing Adler and Cameron cry and seeing their tiny pink bodies was a joy, but feeling Boe being pulled from my body silent and still was heartbreaking. So many emotions and thoughts ran through my mind. How could the other two be here, be alive, and not Boe? How could we have made it this far for this to be the result?

Our Angel

In the days that followed, we were so fortunate to be surrounded by family and friends-people who were there for us in our darkest days. We were also fortunate to be provided with amazing resources to aid in the grieving process. How would we parent the beautiful daughter we already had at home? How would we parent Boe’s surviving brothers while mourning his death? How would we parent the unexpected child who came 18 months after Boe left us? These resources helped. The Balancing Life and Loss: Parenting After Loss Support Group, offered by Forever Footprints, was a huge part of our grief journey. I found comfort sitting with other women who, different as their stories and journeys may be, were right there with me. We were all there for each other, to raise each other up and to laugh, cry, and speak our children’s names aloud so they knew their short lives mattered.

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My miscarriage

When I suffered my first miscarriage at 8 weeks gestation, I did not know what to think, I did not know where to turn.  So many thoughts rushed through my head… Why did this happen?…How did this happen?…What did I do wrong?…Is there a problem?…How can I fix the problem?  I was so focused on what was wrong that I did not even give myself the chance to grieve the loss of my baby.  My doctor told me it was a “blessing in disguise.”  There was obviously “something wrong” with the baby and “nature was taking its course” in terminating the pregnancy.  I had to suffer the painful experience of returning all the maternity clothes I had just bought.
I was thrilled when I learned I was pregnant again, just 7 months later.  I thought, a miscarriage could not possibly happen again.  I had a first ultrasound.  The ultrasound tech said nothing.  The silence was palpable.  I never thought the sound of silence could be so painful.  I knew what was going on, and yet I said nothing.  When I received a phone call from my doctor, who asked me to come into the office as soon as possible, I knew what was coming.  I again had to suffer the painful experience of returning all the maternity clothes I had just repurchased.
So what should you say to someone that has suffered a miscarriage?  Please do not say it is a blessing in disguise.  Please do not say there was probably something wrong with the baby.  Please do not say that it is simply nature taking its course.  Please do not say that you will forget all this when you have your baby.  Please do not remind me that I am still young enough to get pregnant again.   Although all these thoughts are well-intentioned, they are fraught with an underlying current that this is something I simply need to get over.  I will never “get over” having my miscarriages.
All you need to say to someone who has suffered a miscarriage is “I am sorry for your loss.”  It is as simple as that.  It is exactly what the women at the clothing store said to me when I returned my maternity clothes.

Andrea Garcia-Miller is a Senior Attorney at Green & Hall, APC. She first became aware of Forever Footprints after she suffered two miscarriages in a one-year period back in 2011 and became a board member in 2015. She hopes to raise more awareness and support for those who have suffered miscarriage and pregnancy loss.

I’m Still Standing

luke(1)

I’ll admit there are days when I want nothing more than to go back to the person I was on September 8, 2012. They day before everything changed for me forever.

On that day, I still didn’t know too much.

Everything changed on September 9. I woke up that morning with a terrible feeling in the pit of my stomach. I knew something was wrong with Luke when I woke up. I did everything I could to get him to get moving…and nothing.

These are not the things you expect on your 39th week of a completely uneventful, healthy pregnancy.

When we walked into the hospital that day, I remember being told by everyone that they were just SURE everything was fine. I told myself over and over that they were probably right. But I just couldn’t fight that feeling that something WAS wrong.

I just didn’t know how wrong. I don’t think I ever could have guessed that when I felt something was wrong, that he was actually already gone. Nothing to save. Nothing we could do. Just gone.

No one thinks about these things when they’re pregnant. Not until that moment when everything turns upside down on you and you’re forced to face a reality that you never could have imagined.

Sitting there in that delivery room, hearing that we wouldn’t be bringing Luke home with us–ever–that was the minute my life changed. The minute panic set in. Hopes and dreams were dashed. Grief entered, never to leave again. And I had no idea what I was in for.

That day. That week. That year. I still don’t always know what to expect, three years out.

During that 39 weeks Luke and I spent together, I can say for certain that never once did I entertain the thought that I could lose him to a cord accident. That he could possibly just slip away silently after being there so strong for me the entire pregnancy. Or that I wouldn’t even be able to say for sure when he died. Thoughts like that are unimaginable when you don’t know too much.  They would never cross your mind because you never lived in a universe where tragedies like that happened.

But on September 9, it was like I moved residence to Planet-My-Baby-Died. And there was no turning back.

I switched to survival mode. The day is still a blur to me. I was induced, with no idea what to expect. I’d never birthed a child, let alone a baby without a heartbeat. I had no idea how I’d survive.

I did, somehow. Luke’s delivery was complicated. He was 9 pounds, 12 ounces. Shoulder dystocia is a nightmare as it is, but in my case? This was the worst nightmare. I remember blacking out, thinking that maybe I wouldn’t survive either. Maybe that would be OK?

But I’m still standing, three years later. Those first minutes, hours, and days were near impossible. Every step I took was the most difficult step I’d taken in my life. I had no idea how to go on living the life that I was living before I knew I was pregnant with Luke. Everything was supposed to change when he arrived, and yet, there we were. We were changed, but by something we never even imagined could happen. The emptiness and despair of that first week home without him were (hopefully) the darkest days of my life. Somehow, with the support and love of the most amazing family and friends in the world, I’m still standing.

It’s hard to admit that the life I have now wouldn’t be mine had Luke not died. But having him made me a better person. I’m someone people reach out to when they hear of tragedies like ours. I’m willing to be an ear to hear those who have walked these same steps as I have. I know how it feels to experience the unthinkable firsthand.

When you know too much, you know how to be there for people. You know that there’s a dark side to the light that shines on so many others. I understand that not everything is sunshine and daisies. It’s not that I’m jealous (though sometimes, I am). I just know how it feels to be stuck in the dark and come back through all of that to find happiness, and sometimes, I think that might make the joy that I experience even sweeter.

When you know too much, it’s hard to go back and be person you were before. But Luke is part of being who I am now, and I wouldn’t give that up for anything.

 

Jennifer Watanabe works in consulting and is a mama of two–Luke, who she carries in her heart, and her rainbow baby, Lena. She blogs about life and loss on her blog http://dearbabyluke.blogspot.com in hopes to keep her son’s memory alive and spread stillbirth awareness.